“It was painful when my family asked me, “Are you going to die?”” Toyota Motor Corporation released a web video on December 4, 2024 that begins with this message.
This video, created with the aim of changing “misconceptions” surrounding dementia into “understanding,” introduces the anxiety at the time of diagnosis and the changes that occurred after gaining understanding from the family.
“I know” but “I don’t know”… Deep-rooted misunderstandings about dementia
what image do you have of dementia?
Because of the image of “people who can’t do anything,” even mild dementia tends to be treated as if it is severe, and many people suffer from misunderstandings from those around them.
According to Toyota, the following experiences have been received from people with dementia:
“When I was buying juice from a vending machine, someone said to me, ‘So you can buy juice.That’s amazing.'”
“I go to see various places by myself, and people praise me and say, “It’s amazing” and “it’s amazing,” but I can go out on my own.”
“It’s perfectly fine for people to walk me to the front of the toilet, but some of them went into the toilet and stood behind me for a long time.”
In a 2022 survey of Tokyo residents conducted by the Tokyo Metropolitan Government Bureau of Welfare and Health, more than 60% of people with dementia had a level of independence in daily life of 2 or below, indicating that they could be self-reliant if someone was careful about them. The fact that it can be done.
On the other hand, in a survey conducted by Lifenet Life Insurance in August 2014 (targeting 1,000 men and women in their 20s to 60s), 87.8% of people had “heard” of dementia (Alzheimer’s type). Though, only 6.1% answered that they “understood well.” Even those who had a family member or relative diagnosed with dementia accounted for 14.0%.
Due to “misconceptions” about dementia, the things people around them do that they think are good may actually cause suffering for the person affected and may even lead to social isolation.
This prejudice is called ”dementia stigma,” and it is crucial to understand it correctly. The Dementia Basic Act will come into effect in 2024, and the country is moving forward with efforts toward a cohesive society.
The term 100-year lifespan has become commonplace, and dementia is no longer a problem for everyone. Nowadays, it’s not surprising that one day you or a close family member will face dementia at any time, so it’s critically important to have a correct understanding of dementia to prepare for the future.
From misunderstanding to understanding
Toyota’s web video aims to listen to the voices of people affected by dementia and create an opportunity for people to learn more about dementia. Titled “From “misconceptions” about dementia to “understanding,” we introduce letters sent by people with dementia to their families, conveying their thoughts.
one man was diagnosed with dementia 11 years ago and recalls, “It was challenging at the time as I was forced to eat things that were said to be good for dementia every day, and my actions were taken in advance.”
She is still able to work and is grateful, saying, “I’m forgetful, but if I put some effort into it, I can do many things.My family supports me, and thanks to everyone’s understanding, I’m doing well.”
Toyota points out, “Participating in society is said to be effective in slowing the progression of dementia.People with mild symptoms may still be able to play an active role in society
The Basic plan for the Promotion of Dementia Measures based on the Dementia Basic Act states, “Even after developing dementia, there are things each person can do and want to do as an individual, and continue to live their own lives with hope while connecting with friends and others in the familiar area.” A “new view of dementia” was presented,in which “people can do something”.
One employee’s enthusiasm led to the advancement of a device “Towards a world where everyone can enjoy going out with peace of mind”
Why is Toyota working to promote understanding of dementia under the slogan “#CHANGE Dementia”? As a mobility company, our desire is to create a world where everyone can enjoy going out with peace of mind.
Toyota is currently developing “Tsugikoko,” a support tool for people with mild dementia when going out, which is a wristwatch-shaped wearable device that guides the user thru a set route on the screen, by voice, and by vibration.
“tsugikoko” was proposed by Toyota employees as a new business through an internal recruitment system in 2021, and has been developed with the cooperation of more than 100 people so far, with the aim of launching it.
(※Detailed facts“A must-read for people who are worried about people with dementia going out. The truth told by people with dementia and the development of unprecedented devices.”）
In addition, Toyota has been working on the #CHANGE project in the past.“#CHANGE tailgating driving”“#CHANGE license return”“#CHANGE Diversity”“#CHANGE childcare leave”Through these activities, we aim to create a future where more people can live with peace of mind.
Because we live in an era where we don’t know when or who will develop dementia, it’s important to take a look at the misunderstandings about dementia and to correctly understand it, for the sake of our loved ones and for ourselves someday. What do you think?
#CHANGE Toyota’s sustainability
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What are the common misconceptions about dementia that need to be addressed?
Interview Between Time.news Editor and Dementia Expert
Time.news Editor (TNE): Welcome, Dr. Hoshino! Thank you for joining us today to discuss the crucial initiative by Toyota regarding dementia awareness. Their recent video campaign aims to shift the narrative from misunderstanding to understanding. What are your initial thoughts on this approach?
Dr. Hoshino (DH): Thank you for having me! I believe this campaign is an essential step forward. Toyota’s decision to tackle the widespread misconceptions about dementia can lead to greater empathy and support for those affected. By sharing personal stories, they help humanize this often-misunderstood condition, making it more relatable.
TNE: The video starts with a striking quote about the painful questions families ask those diagnosed with dementia. How vital is it for families to understand what a dementia diagnosis truly means?
DH: It’s crucial. Understanding dementia not only alleviates the fears and misconceptions that come with the diagnosis but also helps families provide better support. Many assume dementia means a complete loss of independence, but as Toyota mentions, individuals with mild dementia can still lead fulfilling lives and make choices. Education can reduce stigma and foster an environment where individuals feel supported rather than isolated.
TNE: That’s a powerful point. The article notes that many people equate dementia with total incapacity. How does this misconception affect the day-to-day experiences of those living with dementia?
DH: Regrettably, those misconceptions can manifest in patronizing behaviors or overprotection, which frequently enough lead to frustration and social isolation. For instance, when someone with dementia is praised simply for buying juice or going out independently, it can feel degrading.rather, we should acknowledge their capabilities and support their independence, allowing them to live as normally as possible.
TNE: Exactly. The statistics from the Tokyo Metropolitan Government also align with this, showing that many individuals with dementia maintain a level of independence. What steps can society take to change the narrative around dementia?
DH: Public education is key.Schools, workplaces, and community organizations should facilitate discussions about dementia, focusing on real-life experiences and the potential for independence. Initiatives like the Dementia Basic Act, which encourages community involvement, can also create a more inclusive environment. Moreover, campaigns like Toyota’s can serve as a blueprint for othre companies to engage in similar outreach.
TNE: The article mentions an individual who shared their positive experience in continuing to work despite a diagnosis. What role does continued engagement in society play in managing dementia?
DH: Engaging in social activities can substantially benefit individuals with dementia. studies suggest that participation in social settings can actually help to slow cognitive decline. Moreover, being part of a community fosters a sense of purpose and identity, which is vital for mental health.It’s about creating a supportive environment where everyone,nonetheless of their challenges,can contribute.
TNE: It’s enlightening to hear about the potential for a “new view of dementia,” as suggested by the Dementia Basic Act. What coudl this new viewpoint look like?
DH: A new perspective would involve recognizing each person with dementia as an individual with unique abilities, desires, and experiences.It’s imperative to shift away from the narrative of loss towards one of lived experiences and continuity. By facilitating opportunities for participation and connection, we empower people with dementia to integrated into society and live their lives fully.
TNE: That’s a hopeful vision, Dr. Hoshino. As we move towards a greater awareness of dementia, what personal steps can individuals take to contribute to this understanding?
DH: Individuals can educate themselves about dementia through credible resources and conversations. If you know someone affected by dementia, engage with them positively and proactively. Listen to their stories and respect their capabilities. By fostering a culture of understanding and compassion, we can create a supportive environment for those living with dementia and their families.
TNE: Thank you, Dr. Hoshino,for sharing your insights. It’s clear that understanding dementia is crucial to supporting affected individuals and changing societal perceptions.
DH: Thank you for having me. Let’s continue to promote understanding and empathy,as they are powerful tools for change.
TNE: Absolutely. Thank you, everyone, for tuning in today!