Transplants: “Each interview with the families is different and leaves an emotional mark”

by time news

2023-06-07 12:30:55

Updated

The pediatric transplant coordinator for Niño Jesús, Montserrat Nieto, says that talking to parents about giving up a child’s organs is a challenge. Spain continues to lead this area and has grown by 13% compared to 2022

The transplant coordinator at the Nio Jess Children’s HU in Madrid, Montserrat Nieto.JPGANDULEFE
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“In the faculties of Medicine they do not teach us to give bad news and even less in the worst scenario, which is to tell a family that has lost a child or is going to lose it and talk about organ donation”. This is how Monserrat Nieto, medical coordinator of pediatric transplants at the Hospital Nio Jess in Madridduring the table held this Tuesday at the Ministry of Health on the occasion of the National Organ and Tissue and Cell Donor Day which is commemorated this Wednesday, June 7, and which is focused on paying homage to the families of the donors.

After listening to the role of many of the associations that represent these families and the donors and transplant recipients, Nieto related that giving such bad news in this scenario is a professional challenge, but also “a personal challenge, because each interview with the families is different.” and leaves an emotional mark“, and he added:” We are moved by the desire to help someone that we see in the eyes of those parents.

The medical coordinator of pediatric transplants for Niño Jesús in Madrid also pointed out that her work is somewhat special, “because pediatric transplants are rareFortunately, and because evaluating a possible donor is not easy, since there may be, for example, previous diseases or damage that rule it out”.

As for the process, which, according to what she said, leaves her “exhausted, but in the end very grateful,” she said that they try to inform parents “in the most respectful and empathetic of the entire donation process, which is sometimes very long” but which gives life.

The Minister of Health, Jose Manuel Mioneswas in charge of closing the commemoration act after the closing of the table coordinated by the general director of the National Transplant Organization (ONT), Beatriz Domnguez-Gil, and in which representatives of the four entities that make up the Union of Solid Organ Transplant Recipients (UTxs) were also present: the National Federation of Associations for the fight against kidney diseases (ALCER), the National Federation of Sick and Liver Transplant Patients (FNETH), the Spanish Cystic Fibrosis Federation (FEFQ) and the Spanish Federation of Heart Transplant Patients (FETCO).

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Miones stressed that Spain “continues to be a world leader and benchmark in transplants, behind which there are many stories and a lot of life.” According to the data from the ONT as of May 31 that the minister gave, the number of donors and transplant recipients has increased by 13% in the first five months of the year with respect to 2022.

“A total of 1,010 people have donated one or more organs after his death, 13% more, and 169 while still alive, so far this year”, he said. “Thanks to them – he added – even 2,394 people have received a transplant and they have had that second or third opportunity that has changed their lives, and not only theirs, but that of their families”, highlighted the minister and highlighted the role of the professionals of the National Health System on whom success is piloted. of the model along with the role of families.

In 2022, one in four transplants in Europe was performed in Spain, and 5% worldwide. In addition, as Miones recalled, “Spain is the first country in the world in asystole donation and in 2022, this type of donation increased by 38% compared to the previous year.

Miones also remembered that, since the creation of the ONT in 1989 until now, “there have been 122,317 transplants“. In that year “there were 550 people who donated their organs after their death. Just ten years later, the number has almost tripled to 1,334 donors.”

According to the data exposed by Miones, in Spain “the 84% of families to whom the donation is offered you accepta large increase compared to 70% in the 1990s.” This rate is lower in countries such as Germany (56%), Australia (56%), the United States (76%), Italy (71%) or the United Kingdom (66%). %).

The Minister of Health claimed the importance of donation and the Spanish transplant system, public and ‘free’ for families: “Few therapies are capable of generating an act as beneficial as organ donation. A single donation can benefit more than 100 patients. Today anyone can be a donor, but we can also be on the other side and need an organ,” he concluded.

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