2023-09-08 03:13:26
Tijuana, BC- Despite his strange illness, José Martín Chávez Paredes lives to the fullest every day and at 12 years old he is determined to become an influencer so that the whole world Learn about the condition you suffer from: Duchenne muscular dystrophy.
His digital channel is called Los Locos Chávez, in which his parents and four brothers also participate in fun dynamics to publicize coexistence and raising awareness about the disease.
Yesterday was World Duchenne Awareness Day and in his full adolescence and attending the sixth grade of primary school, Chávez Paredes understands that Duchenne weakens his bones, reduces his mobility and yet he is happy.
I stumble a lot, sometimes my feet get twisted, but anyway I have been able to live a normal life and I have my wheelchair and I have a lot of fun with it going around in the park, but at home I do walk, but that doesn’t happen. “It prevents me from having a normal life,” he said.
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José Martín’s plans also include sending messages to parents, as he is aware of the concern and fear they have had since their children are detected with Duchenne.
“Don’t worry about us, we are going to learn from our disease, we already know how it works, don’t despair, don’t yell at your children, because they get tired very quickly when walking,” he advised.
dreams
José Martín is also preparing to become professional chef and install your own restaurant serving Mexican, Italian or American food.
Mónica Paredes, mother of José Martín and person in charge of Public Relations of the civil association Duchenne Tijuana AC, explained that Duchenne muscular dystrophy is a disease about which little is known.
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It is unknown whether it is hereditary or not, but it affects the development of the muscular system. Therefore, they invite families who have children with this condition to feel supported throughout this process.
on this note
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