“Since he came into this world, he did not stop fighting for a single second” The son of driver Vero Ale dies from a strange illness

2023-10-03 17:55:46

They say well that you should never make fixed plans because life can change in a second, that is what it was like for former host Verónica Alejandra, who has just said goodbye to one of her children from this world. We tell you What illnesses did the son of the driver Verónica Alejandra have?.

Photo: Instagram @veroaleoficial

What illnesses did Verónica Alejandra’s son have?

Through her social networks, the former host of the program Venga la Alegría shared with her followers the heartbreaking news of the death of her son, whom they nicknamed “Chick.”

“Pollis, since he came into this world, has not stopped fighting for a single second to be able to live, to be able to breathe” reads Verónica Alejandra’s farewell publication to her little one.

The 7-year-old boy was born with two rare diseases that prevented him from fully developing: proximal spinal muscular atrophy and Roifman syndrome.

Since Verónica Alejandra had her son in the womb, the doctors told her that the baby could not live long due to the illnesses he suffered from, they told her that he could live at most 6 years, however Juan “Pollito” lived 7, although thanks to one of his illnesses, he always looked like a baby.

According to statements by the former driver, she and her husband knew that having Juan in their arms was going to be momentary, so they even spoke with him “I swear to you Juan that when you want to leave, you can leave, I am only here to make your life easier”

Finally, with a broken heart, Vero Ale shared that his son Juan “Pollito” had left this world on September 28, 2023.

Photo: Instagram @veroaleoficial

What is Roifman syndrome?

One of the illnesses that the son of the driver Verónica Alejandra had is Roifman syndrome which, according to an article published in the United States National Library of MedicineRoifman syndrome is an inherited autosomatic immunodeficiency.

It is an extremely rare condition that modifies not only the immune system, but also the appearance of those who suffer from it, since they are left with a “baby” appearance regardless of whether they are already over 3 years old.

As it is a disease that weakens the immune system, the mortality rate rises considerably, since they can die from any flu or cough, which makes it very dangerous.

What is proximal spinal muscular atrophy?

On the other hand, little Juan, son of Vero Alealso had POM or proximal spinal muscular atrophy type 1, a disease so rare that only 60 cases are registered worldwide.

According to him United States Information Center for Genetic and Rare DiseasesSpinal muscular atrophy type 1, is also called Werdnig Hoffmann disease and is the most severe type of spinal muscular atrophy.

Children with this condition have weak muscle tone, as well as feeding and breathing problems.

This disease can be hereditary or can be the result of a mutation in the genes and so far there is no known effective cure for this condition.

Now you know more about the illnesses that the son of the host Verónica Alejandra had, to whom her followers have not hesitated to express their affection and support at this very complicated moment in her life.