2024-01-07 18:13:19
The first attack: How two young women are living with epilepsy
Julia and Maxime both remember the first time they had an epileptic seizure. Julia was twelve and on holiday in Italy, while Maxime was just nine years old. Their experiences with epilepsy have been different, but they both agree that living with the condition has had a significant impact on their lives.
In the beginning, Julia suffered from attacks every month, but thanks to medication, they are now much less frequent. She takes eleven pills a day to prevent the attacks and now experiences them only every three to six months. For Maxime, her attacks vary in intensity and frequency, with some days having multiple attacks and others having none at all.
The unpredictability of the seizures means that both women have had to make adjustments in their daily lives. Maxime avoids cycling, driving a scooter, or walking to the tram alone, while Julia tries not to let fear dictate her actions. They both emphasize the importance of understanding and awareness about epilepsy in society.
The course of epilepsy varies from person to person, with some being able to outgrow it and others having to deal with it for the rest of their lives. Julia remains hopeful that she may eventually be seizure-free, while Maxime continues to manage her epilepsy with medication.
Both women are advocates for more understanding and research into epilepsy, and they actively contribute to raising awareness through their YouTube channel and Instagram account. They hope that by sharing their experiences, they can help others with epilepsy find clarity and support.
EpilepsyNL, an organization dedicated to supporting those with epilepsy, has received over 1.5 million euros in the past five years, thanks to the support of the Postcode Lottery. The organization works to minimize the impact of epilepsy on individuals’ lives and supports research into the condition.
For more information on EpilepsyNL and their work, you can visit their website.
Overall, the stories of Julia and Maxime highlight the need for greater understanding and awareness of epilepsy and the impact it can have on individuals’ lives. By sharing their experiences and advocating for more research, they hope to make a difference in the lives of others living with epilepsy.]
#story #Julia #Maxime #EpilepsieNL