2024-03-20 02:05:49
(ANSA) – ROME, MARCH 18 – Complicity, support, love is what lies at the basis of fathers’ relationships with their children. A mentoring program is aimed at children and young people with neuromuscular pathologies within the NeMO Pediatric Clinical Center at the Gemelli Irccs University Hospital, presented on the occasion of Father’s Day tomorrow. “Every day we are confronted with the courage, commitment and concern of hundreds of fathers who along the wards of the Gemelli Polyclinic build, together with healthcare personnel, a present full of life for their children who live with neuromuscular pathologies – explains Nicoletta Madia, pediatric design representative of the Gemelli Polyclinic -.
We decided to welcome their experiences, emotions and structure a program dedicated to them with the aim of supporting them”. The mentoring program involves meetings between fathers of different generations on the growth path of their children under the guidance of dedicated social and health personnel. From the management of the pathology, the psychosocial elements are various topics covered. The story of Giuseppe and Sofia is part of this journey. Tender and loving eyes those of father Giuseppe, lively and sunny those of Sofia. “I have always wanted to become a father and I couldn’t see the It’s time to be. When Sofia arrived I was flooded with emotions, but a few months after her birth I also received the diagnosis of spinal muscular atrophy (Sma), a neuromuscular pathology. That moment was brutal. A father wants nothing more than serenity for his daughter and knowing that she was suffering from a rare disease was extremely painful – says Giuseppe -. Over time I understood that we should live every day with positivity, despite the difficulties. This is what my daughter taught me.” “In recent years, thanks to research, therapies and multidisciplinary management, the natural history of spinal muscular atrophy has changed. This ensures that children, young people and their families have a new perspective on life and a better quality'” concludes Professor Eugenio Mercuri, Director of the Department of Women’s, Children’s and Public Health Sciences at the Gemelli Polyclinic. (ANSA ).
2024-03-20 02:05:49