2024-04-15 16:50:52
“The difficulties in Italy are due to the regional situation of the national health system and the difficulties of the centers in transmitting the data and all the steps that the data then have to go through between the Regions, Ace and the Istituto Superiore di Sanità, where the register is kept and hosted ”. This is the comment of Enrico Ferri Grazzi, general secretary of the Federation of Hemophiliac Associations – FedEmo, in a message addressed to FedEmo-Federation of Hemophiliac Associations as part of the conference “I count! Mec: the pathology register and health data, fundamental knowledge and planning tools”, promoted on the occasion of the XX World Haemophilia Day which is celebrated throughout the world on 17 April.
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