2024-04-16 16:00:48
Most health-related anniversaries have the objective of raising awareness about diseases and illnesses. One that has gained relevance in recent years is that of World Hemophilia Day. But do you know in honor of whom the official date of the April 17th?
Within the blood disorders There is one that is quite peculiar because it is located on the edge of the rare diseases and everything is due to its incidence.
What is hemophilia?
The hemophilia It is a rare, inherited bleeding disorder. It is characterized because it causes the blood to not clot properly. In other words, excessive bleeding (internal and external) occurs in any wound or injury.
Is hemophilia a rare disease?
The answer is yes because according to statistics from the World Health Organization (WHO), it is recorded one case in every 10 thousand births at the global level.
In that vein, it is worth remembering that the rare diseases They are all those that occur in less than five people per 10 thousand inhabitants.
Hemophilia: Main symptoms of the most common rare disease in the world
Why is World Hemophilia Day on April 17?
Since 1989 each April 17th commemorates the World Hemophilia Day. The person responsible for choosing this date is Dr. A.S. Frank Schnabelwho is the founder of the World Federation of Hemophilia.
The date was designated to honor his legacy because he was born on April 17. In addition to being a prominent doctor, he was also one of the greatest researchers about this disease because he suffered from it.
What are the symptoms of hemophilia?
- Hemorrhages in the joints.
- Bleeding under the skin (bruises) or into muscles and soft tissues.
- Bleeding in the mouth and gums.
- Hemorrhage after circumcision.
- Bleeding after receiving injections such as vaccines.
- Hemorrhage in the head of the newborn after a difficult birth.
- Blood in the urine or stool.
- Frequent or difficult to stop nosebleeds.
How many types of hemophilia are there?
- Hemophilia A. It is due to a deficiency of coagulation factor VIII.
- Hemophilia B. It is due to a deficiency of coagulation factor IX.
- Hemophilia C. It is due to a deficiency of coagulation factor XI.
Does hemophilia have a cure?
Until now There is no cure for hemophilia. Although what has been developed are treatments to avoid the severity of the symptoms.
How many people with hemophilia are there in Mexico?
Although there is no official record, it is estimated that there are at least 6 thousand patients with hemophilia in Mexico.
What is the best hospital for hemophilia care in Mexico?
What is the best hospital for the care of patients with hemophilia in Mexico?
The IMSS Hemostasis and Thrombosis Clinic, located within the Specialty Hospital of the National Medical Center (CMN) La Raza, is classified as the best for the care of people with hemophilia in Mexico.
Based on all of the above, it is quite relevant to World Hemophilia Day. One of the objectives of the anniversary is to give visibility to this disorder that has no cure and has an intense impact on people’s quality of life.
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