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The needs of patients, the state of the art regarding the disease and the new frontiers of therapies, were the themes at the center of a meeting held in Rome at the Montecitorio Meeting Center and promoted by the Italian association Niemann Pick onlus, in partnership with Sanofi and with the collaboration of OMaR – Observatory for rare diseases. An appointment entitled “Asmd: state of the art and news of an ultra rare disease” which was held at the end of the month of awareness on Niemann Pick’s disease.