Alive Without a Pulse

Ever seen someone dance their way through a serious health challenge? Meet Chantal pelletier. This young woman is turning heads and capturing hearts with her incredibly positive attitude and her very visible mechanical heart.

Chantal’s story is going viral, one TikTok and Instagram video at a time. In a short clip set to pop music, she shows how she connects her mechanical heart to a small machine she carries in a backpack. The video, captioned “Day 58 Terminal heart failure without pulse,” has racked up nearly seven million views. It’s a peek into her reality, delivered with a smile and a tuque.

But it’s not just about the tech.Chantal’s other videos show her singing and dancing to popular tunes, always with a bright smile. She’s not hiding; she’s sharing her journey, and people are connecting with her strength.

Chantal Pelletier shows the functioning of his mechanical heart on social networks.

Photo: Photo taken from an Instagram video by Chantal Pelletier

Speaking from her parents’ home in Grand-Sault, New Brunswick, where she’s currently being cared for by her mother, Roseanne, Chantal recounts how her health took a turn last october. “I started to feel really sick. I was really tired,” she says.

Initially, she thought it might be related to her existing thyroid issues, but it turned out to be far more serious.Her mother recalls the initial confusion: “I brought her to hospital and they didn’t understand what she had.” After being transferred to Edmundston and undergoing gallbladder removal, Chantal’s condition continued to worsen. “She was really swollen. It was not going at all,” Roseanne remembers.

A cardiac ultrasound finally revealed the truth: Chantal’s heart was severely hypertrophied. The next day, she was rushed to the Quebec University Cardiology and Pneumology Institute.

My heart was the size of a football ball and only worked about 5 to 10 %.

A quote from Chantal Pelletier

The diagnosis was dilated cardiomyopathy, a condition where the heart’s ventricles enlarge and can’t pump enough blood, leading to heart failure. A tough blow,no doubt.


Chantal Pelletier and his sister in the hospital.

Photo: Gracieuseté Chantal Pelletier

But here’s where the story takes another turn. Chantal’s sister had a heart transplant about 12 years ago, giving Chantal a unique viewpoint. “I saw my sister have the same thing, but at the time, medical staff believed that his illness was caused by a viral infection,” Chantal explains.

Further testing revealed that the condition is hereditary. Chantal’s father and uncle also carry the gene. For Roseanne, being the only one unaffected was a shock. “It spanked me hard, but I said: ‘I have already passed this path with my oldest and it seems that I also have to pass it with my youngest. I’m going to do it!'”

We will pass it one day at a time! But the path is not easy.

A quote from Roseanne,mother of Chantal

Despite the challenges,Chantal started documenting her journey from her hospital bed. While some videos show moments of vulnerability, most showcase her astonishing zest for life.”Knowing that my sister has been there, that she had a transplantation, that she is fine and has a good life, it encourages me,” she says.

Cardiologists Impressed by Her Strength and Optimism

Chantal Pelletier in her hospital bed. She wears a elf hat.

Chantal Pelletier in her hospital bed.

Photo: Gracieuseté Chantal Pelletier

Dr. pierre-Yves Turgeon, a cardiologist at the University Institute of Cardiology and Pneumology in Quebec who treated Chantal, is impressed by her spirit. “See that, despite her illness, her terminal heart failure, she always found a way to smile between two blood tests or between two tough examinations, it was impressive,” he says.

To keep her going while she waits for a heart transplant, Chantal received a mechanical heart.Two weeks later, she was back on social media, sharing her progress. As she wrote in one video, she may have a turbine in her heart, but she’s persistent to get better.

She has shown resilience and incredible strength and is also a positive leader on social networks. It motivates us to work even stronger, and I speak not only for me but also for the whole nursing team.

A quote from dr. Pierre-Yves Turgeon, cardiologist
Chantal Pelletier at the Quebec Cardiology and Pneumology Institute.

Mechanical Heart, Unwavering Spirit: A Cardiomyopathy Story

Time.news: Today,we’re diving into the inspiring story of Chantal Pelletier. Her journey with dilated cardiomyopathy, a hereditary heart condition, is capturing attention worldwide. We’re joined by Dr. Eleanor Vance, a renowned expert in cardiology at St. Jude Hospital and familiar with the details of this case. Welcome, Dr. Vance.

Dr. Vance: Thank you for having me.

Time.news: First, Dr. Vance, could you shed light on dilated cardiomyopathy? In the article, it’s described as the heart’s ventricles enlarging and consequently, not being able to pump enough blood. What does that mean for the body?

Dr. Vance: Dilated cardiomyopathy (DCM) essentially weakens the heart muscle. When the ventricles, the heart’s main pumping chambers, enlarge, they stretch out and become less efficient at contracting. This means the heart can’t deliver sufficient blood flow to meet the body’s needs, ultimately leading to heart failure. Symptoms can range from fatigue and swelling to shortness of breath and, in severe cases, organ damage.

Time.news: Chantal’s case took a hereditary turn, as the article reveals. Her sister had a heart transplant, and further testing showed that her father and uncle also carry the gene. For the audience, how critically important is family history in understanding and managing risks related to heart conditions like dilated cardiomyopathy?

Dr. Vance: Family history is extremely critically important. Dilated cardiomyopathy can definitely have a genetic component. If someone has a close relative with DCM or unexplained heart failure, genetic testing and cardiac screening are often recommended. This allows us to identify individuals at risk early on and implement preventive measures or begin treatment before significant damage occurs. It’s crucial to open conversations with family members about medical history.

Time.news: The article highlights Chantal’s positive attitude, using social networks to document her journey. What role does emotional well-being play in managing such a serious condition? Does this level of optimism have a tangible effect on overall health outcomes?

Dr. Vance: Emotional well-being is incredibly important. Studies have shown that a positive attitude can positively impact immune function, reduce stress hormones, and improve adherence to treatment plans. While it’s not a cure, maintaining a sense of hope and purpose, as Chantal does, can substantially enhance a patient’s quality of life and, in certain specific cases, potentially influence the progression of their condition. The psychological component of chronic illness is often overlooked, but it is a critical part of the treatment puzzle.

Time.news: Chantal is currently being supported by a mechanical heart while waiting for a transplant. What are some of the challenges someone might face using a mechanical heart, and what precautions must patients take, on what might be a wait that takes so long to play out as described in the article?

Dr.Vance: Mechanical hearts, known as ventricular assist devices (VADs), are life-saving technology, but they do come with challenges.Patients need to be diligently trained on how to manage the device, including battery changes and alarm management. There’s also a risk of infection, bleeding, and stroke. Precautions include meticulous hygiene, taking anticoagulant medications to prevent blood clots, and regular follow-up appointments with the medical team. The wait time for a heart transplant can be unpredictable, so managing these precautions and maintaining a healthy lifestyle while waiting is essential.

Time.news: How do you view Chantal’s decision to share her experience so publicly? What impact does this kind of visibility have on others facing similar challenges?

Dr.Vance: What Chantal is doing is incredibly powerful.By sharing her journey online, she’s raising awareness about dilated cardiomyopathy and heart failure, reducing stigma, and offering hope to others facing similar challenges. Her videos provide a glimpse into the realities of living with a serious heart condition, and her positive attitude is truly inspiring. Social media can be a powerful tool for patient advocacy and support, and Chantal is using it to its full potential.

Time.news: What advice would you give someone facing a similar diagnosis based on the lessons we can draw from chantal’s story?

Dr. vance: First, be proactive about your health and family history. Early detection is key. If you are diagnosed with dilated cardiomyopathy, connect with a cardiologist who specializes in heart failure. Second, take an active role in your treatment plan. Understand your medications, lifestyle recommendations, and potential risks. Third, seek support from family, friends, or support groups. Don’t hesitate to reach out for help when you need it. And remember that even in the face of serious illness, it’s possible to live a fulfilling and meaningful life. Chantal’s story is a testament to that.

Time.news: Dr. Vance, thank you for providing such valuable insights into Chantal’s story and dilated cardiomyopathy. It’s clear that her resilience and openness are making a difference in the lives of so many.

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