MONTREAL, February 6, 2026 – A deeply moving video of Celine Dion grappling with the debilitating effects of Stiff-Person Syndrome (SPS) has resurfaced online, sparking renewed concern among her devoted fans and prompting a wider conversation about the rare neurological disorder.
Fans React to Heartbreaking Footage
The video offers a raw and intimate glimpse into the singer’s ongoing health battle.
- Celine Dion is living with Stiff-Person Syndrome, a rare neurological disorder causing muscle rigidity and painful spasms.
- A video from the 2024 documentary “I Am: Celine Dion” has gone viral, showing the singer experiencing visible distress.
- Fans have expressed both concern for Dion’s well-being and gratitude for her openness about her condition.
- The video has ignited debate about the ethics of publicly documenting such personal struggles.
The footage, originally from the 2024 documentary “I Am: Celine Dion,” shows the 57-year-old singer lying down, visibly trembling, and struggling with painful spasms. The video quickly gained traction online, prompting an outpouring of support and worry from fans worldwide.
The singer suffers from a rare autoimmune neurological… pic.twitter.com/lVizxjgb4d
– HustleBitch (@HustleBitch_) February 4, 2026
The video has elicited a strong emotional response, with many fans praising Dion’s courage in sharing her struggles. Though, some have questioned the appropriateness of publicly releasing such personal footage. “Why was this video made public? It never should have been on the internet,” one fan wrote. Another questioned the intent behind documenting her vulnerability, stating, “I don’t think it should be documented. What’s the purpose?” A third expressed concern about privacy, asking, “Why is someone’s private and vulnerable moment being published like this… it’s an invasion of privacy.”
Conversely, many supporters applauded Dion for sharing her experience, believing it will raise awareness about the little-known condition. “She can show whatever she wants,whoever she wants,” one user commented. “God bless this woman during her recovery.I pray that she not only heals from this but shares her love with others once she’s well.” Another wrote, “This honesty matters.It reminds us that illness doesn’t care who you are. Behind the voice, the legacy, and the applause, a human being is quietly suffering.”
Dion’s Public Disclosure of Her Illness
In a candid interview with the BBC in 2024, Celine Dion openly discussed her diagnosis and its impact on her career. She described the emotional toll of noticing subtle changes in her voice during tour rehearsals. “At first, I just felt it was a little bit strange, like a little bit spasm,” she explained. “My voice was struggling, I had to put more effort into it.”
Hitting the correct singing notes became increasingly arduous, and she frequently enough had to ask her conductor to lower the key during performances. Adjusting the pitch was her way of staying on stage and giving her voice a chance to recover.Dion has been on hiatus since receiving her diagnosis.
