EDS & Caregiving: Ria’s Story | Chronic Illness Support

by Grace Chen

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The Double-Edged Sword: How ADHD Impacts Family Caregivers

A growing number of individuals are navigating the complex world of informal caregiving while concurrently managing their own neurodevelopmental conditions. For one woman, identified as Ria, ADHD presents both unique strengths and critically important challenges in her role as a family caregiver.

The demands of unpaid caregiving are substantial, often requiring a delicate balance of emotional resilience, logistical planning, and personal sacrifice. Ria’s experience highlights the often-overlooked intersection of caregiving and neurodiversity, offering a glimpse into the realities faced by millions.

Did you know? – Informal caregivers provide unpaid support too family and friends, contributing billions of dollars in economic value annually.

The Upsides of a Neurodivergent Approach

Ria explains that her ADHD allows her to “go into a higher gear when somthing needs to be solved and approach it with an open mind.” This heightened ability to problem-solve and think creatively can be invaluable when facing the unpredictable challenges inherent in caregiving. However,this intensity comes at a cost. She acknowledges that this approach “often makes people think that I am panicking and it also makes me tired more quickly.”

This observation underscores a common experience for individuals with ADHD: the tendency to hyperfocus and expend significant energy on tasks, leading to burnout. Ria recently experienced this firsthand, noting that after an exceptionally busy week, she was “forced to take a step back.” She manages this by strategically delegating tasks, directing her husband to handle responsibilities like grocery shopping for her father, even if he finds it unpleasant.

Pro tip – Delegating tasks is crucial for caregivers to prevent burnout. Identify responsibilities others can handle, even if they aren’t preferred.

Navigating Barriers to Re-Entry into the Workforce

Ria has not been employed for twelve years, dedicating her time to caregiving. She expresses a desire to return to work, but acknowledges the complexities involved. her situation is further elaborate by her own limitations, which she doesn’t specify, and the bureaucratic hurdles associated with accessing support.

The UWV, a Dutch agency responsible for employment and benefits, allows her to apply for inclusion in a “target group register” designed to assist individuals facing employment barriers. However, Ria finds the application process itself daunting. “I am busy, my head is overcrowded, and I actually need guidance with something like this,” she states. This highlights a critical gap in support services for caregivers – the need for assistance navigating complex systems and accessing available resources. She hopes to address this when “calmer waters” arrive, recognizing that immediate priorities demand her attention.

Reader question – Caregivers often face difficulty re-entering the workforce due to gaps in employment and the demands of caregiving responsibilities.

The Rewarding, Yet Demanding, nature of Informal Care

Despite the challenges, Ria emphasizes the positive aspects of informal care.She describes it as a “rewarding task, very educational and sometimes very funny,” while also acknowledging its inherent toughness. She recognizes that many caregivers are also managing their own health concerns, adding another layer of complexity to an already demanding role.

Ria extends encouragement to other informal caregivers, stating, “whether you care for one person or several people, it’s great if you can do that and it’s great how you do it all.” This sentiment reflects a shared sense of purpose and resilience within the caregiving community.

Individuals seeking to share their own caregiving stories are encouraged to email a brief description to [email protected] with the subject line “Informal care,” including their telephone number. Anonymous submissions are also welcome. Those in need of support can contact the Informal Care Line at 030

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