2024-04-01 13:10:38
Elzytė’s mother Silvija Kopūstienė for the portal lrytas.lt said that Elzytė’s death was very unexpected – the girl was neither sick nor had a fever. “She left in peace. We went to sleep, she in the crib next to us, and she passed out so quietly and peacefully, in her crib, surrounded by people who loved her. This miracle on earth has ended, well, but maybe there will be others, after all, there are many sick children,” said the mother through tears.
It will be possible to say goodbye to Elzyte from Friday afternoon in the “Rekviem” armory hall in Kaunas, Jonavos st. 41A, the urn is removed on Saturday.
As he wrote earlier lrytas.lt, Elsa was born with congenital Edwards syndrome. Her mother said that their family was very lucky to have Elzytė: 95 percent. such pregnancies end in miscarriages, and 95% of the children born. dies in the first year of life. Well, Elzytė does not obey these statistics and her mother dreams that she will continue to ignore them – it is written that in the age of 10 receives only 1 percent of children.
She was the youngest of four children, all the older ones are healthy.
“It wouldn’t be so terrible, but Edwards syndrome is incompatible with life. This is why Elsa is proof of God’s power and goodness. Our daily dream is to live another day. Every day I pray for one more, even one more day,” her mother said.
The parents found out that Elsa would be different from most children only after she was born. During the pregnancy, they went for genetic counseling, but because the chances of the disease seemed low and the queues of people waiting for tests were huge, no further tests were done.
Silvija thought that perhaps it was precisely because her daughter’s diagnosis was not known in advance that the doctors revived her. When a woman’s placenta ruptured during childbirth in Kaunas clinics and the child began to suffocate in her belly, a cesarean section operation was performed in a record short time – 10 minutes. The newborn’s heart was barely beating, but they managed to revive him. If the doctors had known that the fetus was diagnosed with Edwards syndrome, they would have had the right not to resuscitate her.
When Silvia heard about this rare genetic disorder shortly after giving birth, she started looking for information on the Internet and for a while she couldn’t believe what she heard – the sick children looked bad in the pictures, but she thought her daughter was absolutely beautiful.
“I want to prove to society that people with Edwards syndrome also have the right to live. And the international community is working to remove incompatibility with life from the description of Edwards syndrome. As I already mentioned, Elzytė is a very sweet, warm, smiling child. And Down’s syndrome was considered incompatible with life 20 years ago, and now those who have it are recognized by society, some of them even have jobs,” said the girl’s mother a few years ago.
Raising Elsa, who had serious health problems, and knowing that her condition was very dangerous, the relatives valued every day spent with her.
2024-04-01 13:10:38