Tuesday, April 11, 2023, 4:13 p.m.
Pediatric Hematology and Oncology Unit Department of Pediatrics Chulalongkorn Hospital, Thai Red Cross Society in collaboration with Siriraj Hospital Ramathibodi Hospital Phramongkutklao Hospital Hemophilia Foundation of Thailand and the Hemophilia Patients Club of Thailand jointly organized the event “Hemophilia Family Day 2023 Fit 4 Fun: Fit like a Boy” on Sunday, April 23, 2023, from 8:00 a.m. – 1:00 p.m. at Meeting Room 302, 3rd floor, Rattana Wittayapat Building. Chulalongkorn Hospital By emphasizing the importance of exercise.
in patients with hemophilia to strengthen the bones muscles and joints of the body and reduce the risk of bleeding in muscles and joints Makes patients with hemophilia bleeding easily do not have disabilities. Able to have a good quality of life and daily life equivalent to normal people
Hemophilia easily bleeds It is a genetic disease that occurs only in males, about 1-2 thousand people will find one patient with this disease. This disease is caused by a defect in the gene that creates blood clotting factors. Most patients have abnormal bleeding from birth. or may be found in childhood to adolescence After a muscle and joint concussion, there are currently about 1,800 hemophilia patients in the country, but in the future, more patients may be diagnosed. especially the patient with few symptoms Bleeding symptoms of hemophilia are characterized by bleeding in 80–100% of the joints and 10–20% of the muscles, which may occur after an accident. or concussion, such as playing sports, etc.
Exercise is an important factor in promoting the nervous system and muscles. Increase body strength as well as patients with hemophilia are often at risk of having low bone mass. Therefore, to strengthen the bones in addition to preventing bleeding in the joints Eating foods that contain calcium and getting proper vitamin D. Exercise is another factor that makes bones and joints strong. In particular, doing activities with force against gravity should exercise regularly at least 3 times a week to strengthen the muscles and around the joints in order to avoid bleeding in the joints or muscles, such as swimming. Water, brisk walking, cycling, badminton, etc.
In addition, providing accurate knowledge about hemophilia to patients and their relatives. including close ones Preventing bleeding in patients with hemophilia is just as important as treatment. For continuous protection by providing factors The very important thing that patients with this disease should practice is to exercise properly and regularly. to strengthen the bones and muscles around the joints leading to better joint health Decreased rate of bleeding in the joints and better quality of life for hemophilia patients By allowing patients to do routine self-treatment at home at least once a day for 30 minutes and a frequency of 3-4 times a week. Sports that should be encouraged to be played in hemophilia patients, such as swimming, badminton, table tennis, cycling, and running or walking for exercise, etc., because they are safe sports. and helps promote stronger muscles around the joints Should avoid playing sports that require impact such as football, basketball, boxing, etc. If patients with hemophilia bleed easily have bleeding in the muscles and joints. and has not been properly taken care of in a timely manner Repeated or severe cases can lead to long-term complications in the joints. Tissue
The inside of the joint may become fibrous, which will result in long term movements in the joint. Also, if there is bleeding in one joint, it will increase the risk of repeat bleeding in the same area. As a result, the muscles around the joints are weak. joint pain even when resting inability to do everyday activities easily may lead to disabilities in the future
Participants at the event will receive knowledge on the topic – updates on rights and current treatment. Discussion on disbursement of factor drugs in the NHSO system. and current treatment methods From specialist doctors and the secretary of the NHSO.
– How to exercise to get “fit and hit like a boy” Discussion on how to exercise for hemophilia patients. Counseling, advice and self-care from rehabilitation medicine physicians Specialist nurse and sports scientist
– Share exercise experiences from seniors to juniors It tells the real experience of senior hemophilia patients. with the benefits of exercise
– Exercise activity “Fit with Drill”, a joint exercise activity for hemophilia patients. With a team of sports scientists demonstrating and coaching, the organizers expect that This activity will be useful and will strengthen the morale of self-care for hemophilia patients and their families.