Higher training course for patient associations is underway

by time news

Starting today “Raise the patients’ voice, the advanced training course dedicated to patient associations wanted by Janssen (Johnson & Johnson), in collaboration with Altems, the High School of Economics and Management of Health Systems of the Catholic University of Rome . The initiative, which will involve 71 representatives of 30 patient associations until 27 November engaged in theory courses and laboratories, was presented this morning at an online press conference. Among the objectives of “Raise the patients’ voice: to help patient associations to increase their skills in institutional advocacy actions, to communicate more effectively with institutions and to systematize health policy tools, methods and interventions.

Present at the online meeting: Americo Cicchetti, director of Altems, Maria Teresa Petrangolini, Director of the Patient Advocacy Lab of Altems, Rodolfo Lena, President of the VII Commission – Health, social policies, social and health integration, welfare of the Lazio Region, Francesca Maletti, vice president of the Commission IV Health and Social Policies of the Emilia-Romagna Region and Loretta Mameli, Patient Engagement and Pipeline Execution Lead of Janssen Italia.

“This advanced training course – says Cicchetti – is the right project at the right time, a very timely initiative that sees Janssen’s far-sightedness that made it possible. We think that the growth of patient associations goes through their structuring from the point of view of internal governance models, because this is what allows them to raise their voice and make sure that that voice arrives loud and clear. This does not necessarily mean putting oneself in a perspective of vindicating certain legitimate requests but understanding from within what are the common problems and objectives to be addressed “.

The new National Chronicity Plan – which emerged from a video broadcast during the conference – provides for a more active role for associations which, not surprisingly, see in the higher education course an opportunity for discussion and professional and personal growth . The PNRR is a “great opportunity for the country and for the NHS – continues Cicchetti – but it must not be just a mountain of money that falls on an old system. If we are unable to review some institutions and some organizational methods, we risk that the return on that investment will be limited “. For the director of Altems “reforms and changes” are needed.

“There is a need – Cicchetti has no doubts – to train a ruling class but also to help create a culture of participation is crucial. To make reforms, change the system and obtain important results from this rain of resources that will arrive in the next five years to renew our NHS we have to speak the same language. It will be fundamental to obtain the participation of those who are the final users, that is citizens and patients. “For Francesca Maletti, Vice President of the IV Commission for Health and Social Policies of the Emilia Region -Romagna, at this moment “a great collaboration between institutions and patient associations is fundamental and also necessary”. “Health and social needs have changed – he adds – so the answers we must give must be different than in the past”.

On the same wavelength Rodolfo Lena, President of the VII Commission – Health, social policies, social and health integration, welfare of the Lazio Region: “We must work, build, monitor and verify this means guaranteeing the quality of the social and health services provided at the highest level . The Lazio Region in October 2019 – he reports – set up a control room with the associations, to date there are eighty members representing almost 55 thousand users. In the last meeting, which was held on 21 July, the simplification of procedures, the good practices of facilitating access to emergency rooms by patients, were discussed in practice because now we are moving towards a much stronger local healthcare ” .

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