The Muscular Dystrophy Patients Association announced the death of the child Ayoub Naji Ahmid, a 16-year-old patient with muscular dystrophy, from the city of Yafran.
The association said that Ayoub died after he entered the hospital yesterday, Monday, suffering from shortness of breath.
The association pointed out that Ayyoub has two brothers who suffer from the same disease, and they are waiting for Duchenne medications to be provided to them and the rest of their companions and to provide them with comprehensive health care.
On the 15th of this month, the association announced that 3 cases had been admitted to intensive care, due to procrastination and delay in taking the genetic injection and the discontinuation of the drug Risdiplam, after they were in good condition, according to the association.
On the 13th of this month, the association announced the death of the child “Zahra Bilal” from the city of Tajoura, who was one year and six months old, due to the delay in the gene injection and the interruption of the medication, and she had been waiting on the list of cases nominated to receive the gene for 10 months.
On the 9th of this month, the association mourned Ahmed Shalbak, nicknamed “Zaatar,” after he suffered from a health problem.
Last July, the association announced the death of three muscular dystrophy patients within one week, namely “Bayan, Mansour, and Naji,” expressing its dissatisfaction with the lack of provision of medications, genetic tests, and the opening of a health care unit for atrophy patients.
On July 23, the head of the Government of National Unity, Abdel Hamid Dabaiba, issued his instructions to provide genetic laboratories for muscular dystrophy patients and their families, and to begin procedures for supplying them, with the necessity of continuing to conduct genetic analyses for patients and their families.
Dabaiba stressed the urgent completion of treatment for cases under two years of age, and the provision of specialized and general medicines related to this disease through manufacturing companies.
Al-Dabaiba directed the necessity of implementing the physical therapy program internally, through the agreement concluded by the Therapeutic Services Development Authority with one of the specialized companies, and giving importance to this program.
Last June, a number of muscular dystrophy patients called on the unity government to find a radical solution to the health obstacles they face throughout the country, especially those related to their access to medication.
Source: Muscular Dystrophy Patients Association in Libya + Libya Al-Ahrar Channel
2024-08-23 06:02:32