2023-07-31 05:00:00
They organized a carnival for her, which was attended by a huge number of people. “I was surprised, moved and also surprised that the choice fell on us. I know that there are more disabled people in Kravaří,” said Widenková, which financial injection will help a lot.
The 60-kilogram Verunka is lifted into the cart by a ceiling system powered by flashlights. One costs four thousand. She herself also needs a lot of drugs and supplements after cancer treatment, which are not covered by insurance. “We will use everything for medical supplies and aids,” added the woman tried by life.
The husband left the family
The husband could not bear the death of his son from pneumonia and the illness of his daughter from muscular atrophy and left the family years ago. Mrs. Jana was left alone and did not stop all day. Veronika’s physical and mental abilities stopped in one year. A device helps her breathe, her mother has to feed her through a tube in her nose.
The mother spent the first five years with her daughter in the hospital, because at that time breathing apparatuses were not available for rent at home. Since that change, the woman has learned to handle all the care herself.
Muscular atrophy, which Veronika suffers from, is a congenital disease in which the muscles gradually diminish, patients often have difficulty swallowing, and later also breathing.
Everything for my daughter
“We go to the hospital as little as possible. Any infection could be a threat to Verunka, for example lung disease, she might not survive,” explained the mother, whose family, boyfriend and friend were a great support during the time she was undergoing chemotherapy, radiation and surgery.
“Sometimes I ask myself why fate didn’t give me healthy children. I answer that maybe because he knew that I would take care of the sick as best I could. That I’ll give them everything” added Mrs. Jana.
At least two days
Since she was 24 years old, Mrs. Jana, a trained cook and waitress, has been at home for sick children. She had never been alone for half a day in all those years. “I would very much like to have two days to myself. I would spend one in bed and the other I would go to Lysa hora. However, so far I have not been able to find someone reliable to stand in for my daughter.” she stated.
In her rare free moments, Ms. Jana sits down and creates beautiful boxes using the napkin technique. The method is professionally called decoupage. “I usually give them to friends and loved ones on various anniversaries,” concluded the woman, who was not defeated by a harsh fate.
VIDEO: Jiřík, diagnosed with SMA, has made enormous progress in the year since the administration of the drug Zolgensma.
Jiřík with SMA has made enormous progress in a year.
The development of Verunka’s daughter stopped at around five years old, as evidenced by the size of her hands.
Author: Foto Blesk – Jana Gartnerová, archive of J. Widenková and Botunicneni
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