2023-06-18 06:02:47
Sasha becomes pregnant again, this time with a boy they name Travis. “After giving birth, I became very ill and often had to be hospitalized.” She is very grateful to her doctor from that time, because she arranges for her newborn baby to go to the hospital and that they get a private room together. “I was totally in my baby bubble, but then kind of got realitycheck. My liver was really bad.” Sasha is now on the transplant list. Because it’s not a question of if, but when her liver will stop working.
It is what it is
“My battery is actually always empty,” explains Sasha. She is increasingly trying to listen to her body, but that is often difficult with two little ones around her. “I have to listen to myself a little more, but very often the primal mother took over and I just kept going.” Her eldest child Realyn is a bright girl and already knows when mom is not doing well. “When I got a fever and had to go straight to the hospital, I Facetimed her and she said, ‘Mommy, are you at the doctor’? That broke my heart that she already recognizes the emergency room.” Sasha finds that confrontational. “You don’t want your child to realize you’re sick.”
“It is what it is” is her motto. “I can’t change anything anyway, so try to make the best of it.” That doesn’t mean she doesn’t have bad days, “but I don’t want to get caught up in the negativity.” She doesn’t know what the future looks like. “It is now stable and that is very nice. But I have to take blood tests every three months and the day will come when my liver will die.” Sasha has decided not to worry too much about that. “If I start focusing on it, I will live in fear and I don’t want that.”
Ask for help
She wants to impress on people in similar situations that they are not their illness. “Don’t let it take over and try to live in the now. The future is not guaranteed anyway, so it is a shame to worry about it now.” She also wants to emphasize that it’s okay to ask for help, although she still has to learn that herself. “I’m not good at it either, but know: you can’t do it alone and you don’t have to do it alone.”
Sasha shares her life as a chronically ill patient, mother of two young children, entrepreneur and photographer via Instagram.
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