2023-04-21 11:41:58
With remote care you send us information about your health. This can be a measurement of a physical value, such as the result of the calprotectin test. But also a questionnaire about how you feel. With the data about your health, your IBD nurse will advise you remotely. Remote care is an aid to treatment.
Remote care is an extra way to monitor your health yourself. This will give you more insight into your illness. You know when you are doing well or not, and what you can do yourself
Why remote care?
The risk with IBD is having a flare-up of your bowel disease. You will then become sicker. Sometimes you have to be admitted to hospital for this. The symptoms are different for everyone. You may experience abdominal pain, diarrhea and blood in your stools. You also get very tired very quickly. If you recognize your complaints in time, you can also tell your doctor in time. This way you can prevent a flare-up or even hospitalization. Remote care helps you with this. You gain more insight into your illness and know when you are doing well or not, and what you can do yourself.
For remote care, use the Thuismeten app and the BeterDichtbij app.
With the Thuismeten app you fill in a questionnaire at fixed times about your intestinal complaints, about how you feel and whether you have other problems due to your intestinal disease. You do this more often in a troubled phase of your bowel disease than in a calm phase. You can also use the app to pass on the results of the calprotectin test if this is necessary for your treatment. The IBD nurse will discuss with you whether you should have calprotectin tests.
A schedule will be prepared for you in the Thuismeten app. The app gives you a reminder. This makes it clear to you when you need to complete a questionnaire or do a calprotectin test.
The IBD nurses receive your data via the Thuismeten app. You will always receive a response when you send in a questionnaire or the results of a calprotectin test. Does the IBD nurse see that you are getting worse? Or that there is a risk of a flare-up of your disease? Then she will contact you personally via the BeterDichtbij app or she will call you. She will discuss with you which care suits you best at that moment.
Do you doubt yourself? You can always fill in an extra questionnaire yourself in the Thuismeten app. Or contact your IBD nurse via the BeterDichtbij app.
How do I measure my calprotectin level?
You only do calprotectin tests if your IBD nurse has discussed this with you. You measure your calprotectin value with the QuantOn cal home test. The IBD nurse will explain how to do the home test. And what you need for that.
Do you need new home tests? Then you can send a message via the BeterDichtbij app. You will then be sent new home tests.
The IBD nurse registers you for remote care. For remote care you need the Thuismeten app and the BeterDichtbij app. Below you can read more about the Thuismeten app.
Would you like more information about the BeterDichtbij app? Check out isala.nl/BeterDichtbij.
How do I install the Home Measurement app?
To use the Thuismeten app, you need a smartphone or tablet. You must download the Home Measurement app from Luscii on your smartphone or tablet. Below is a step-by-step guide on how to do that.
- You will receive an e-mail from Luscii about the Home Measurement app at the e-mail address you provided. You can then install the Home Measurement app. It is important that you can read this e-mail in the hospital so that we can explain the Thuismeten app to you in the hospital.
- If you do not see the e-mail immediately, please check the spam or unwanted e-mail.
- You download the Home Measurement app on your phone or tablet via the App Store or via the Play Store.
- To complete the registration, you will receive a verification code by email. Enter this code within 15 minutes, otherwise the code will expire and you will have to register again.
- Do you have problems installing the Home Measurement app? Then use the Luscii helpdesk. You can call (085) 13 05 851 (available from Monday to Friday, 8:30 am to 5:00 pm) or send an email to: [email protected]. Or go to the online help page www.luscii.com/hulp.
How does the Home Measurement app work?
Have you installed the Home Measurement app? Then watch the video ‘How does Home Measurement work’ by Luscii. Here we explain how the Thuismeten app works.
The most important parts of the Home Measurement app:
Actions
Here you will find the measurements you need to take that day and on which day. These are, for example, the questions you must complete.
Self-care
Bee Self-care contains additional information about Crohn’s disease or ulcerative colitis. You will find here, among other things:
- information about Crohn’s or ulcerative colitis;
- tips for a healthy lifestyle and diet.
If you have a question for your healthcare provider, you can send it via BeterDichtbij. Your IBD nurse or nurse specialist will then send you a message back within three working days. You can use the BeterDichtbij app on your phone. Or via the Thuismeten app to BeterDichtbij. You can find this at Self Care.
NB!
For medical emergencies, call the Stomach, Bowel and Liver Diseases outpatient clinic or your GP. Always call 112 in case of emergency.
To report
Does the IBD nurse see that you are getting worse? Or that there is a risk of a flare-up of your disease? Then she will contact you personally via the BeterDichtbij app or she will call you. She will discuss with you which care suits you best at that moment.
Problems with the Home Measurement app?
Do you have (technical) problems with the Thuismeten app? Then use the Luscii helpdesk. You can call (085) 13 05 851 (available from Monday to Friday, 8:30 am to 5:00 pm) or send an email to: [email protected]. Or go to the online help page www.luscii.com/hulp.
Problemen met tablet of smartphone?
Do you have problems with your own device (iPad, tablet, smartphone) and you cannot fill in a measurement? Then let us know that you cannot complete a questionnaire or measurements. You can call the Stomach, Bowel and Liver Diseases Outpatient Clinic on 088 624 6223 (available on working days from 8.30 a.m. to 5 p.m.).
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