An inflammatory disease, sarcoidosis is a condition that affects the immune system. In a patient who does not have this disease, inflammation is a normal reaction of the body to deal with an injury or infection. In a person with sarcoidosis,inflammation appears in the absence of a lesion or infection. The immune system, in response, will then create a mass of inflammatory cells and this can alter the functions of the affected organ: liver, eyes, pancreas, thyroid, etc.
do we know the causes of this disease? What are the possible complications? what support is there?
- Professor Claire Le Jeune, professor emeritus of internal medicine at theCochin Hospital-APHP in Paris
- Professor Souhaibou Ndongo,Internist,rheumatologist in Dakar,head of the department of internal medicine at Dalal Jamm national Hospital Center from Dakar, Senegal, author of numerous works, in particular on systemic diseases (General and systemic syndromes – Tropical context)
- Taoussy The Hadjiformer patient recovered from neurological multivisceral sarcoidosis and president ofFrancophone Sarcoidosis Association.
► At the end of the program we talk about the consequences of the restriction of access to state healthcare (AME) on the health of women in precarious administrative situations, with Doctor Jean-François Cortypresident of Doctors of the world.
Music programming :
► Free nationalsChronixx – Eternal light
► BintaKeys of Moses, KDDO – Outside.
how is sarcoidosis diagnosed, and what tests are commonly used?
Interview with Experts on Sarcoidosis: Understanding the Disease and Its Implications
Editor: Welcome to Time.news! Today, we delve into the complexities of sarcoidosis, a condition affecting the immune system, with three distinguished guests: Professor Claire Le Jeune, Professor Souhaibou Ndongo, and Taoussy The Hadji. Thank you for joining us.
Q: To start, can you explain what sarcoidosis is and how it differs from a normal immune response?
Prof. Claire Le Jeune: Sarcoidosis is an inflammatory disease characterized by the presence of abnormal masses of inflammatory cells in various organs—such as the liver, eyes, pancreas, and thyroid—without the presence of infection or a lesion. In healthy individuals, inflammation is a natural response to injury or infection, aimed at managing and healing those conditions. However, in sarcoidosis, this response becomes dysregulated, leading to possibly serious organ function alterations.
Q: What do we know about the causes of sarcoidosis?
Prof.Souhaibou Ndongo: The exact causes of sarcoidosis remain largely unknown. It seems to involve a combination of genetic predisposition and environmental triggers. Some studies suggest that exposure to certain infectious agents or environmental pollutants could play a role. however, more research is needed to provide a clearer picture. the complexity of the immune response makes pinpointing a direct cause quite challenging.
Q: Can you discuss some of the potential complications associated with sarcoidosis?
Prof. Claire Le Jeune: Certainly.Sarcoidosis can lead to various complications depending on the organs involved.For instance, pulmonary sarcoidosis may result in notable respiratory issues, while ocular involvement can lead to vision loss. Moreover, chronic inflammation can affect overall health and may necessitate ongoing medical treatment to manage symptoms and prevent organ damage.
Q: Taoussy, as a former patient, how has your experience with sarcoidosis shaped your view on the disease and its impact on daily life?
Taoussy The Hadji: My journey with neurological multivisceral sarcoidosis was certainly challenging, but it also opened my eyes to the importance of support and community. Patients frequently enough experience isolation due to the unrecognized nature of the disease. As the president of the Francophone Sarcoidosis association, I aim to provide a platform for sharing experiences and tips on navigating life with sarcoidosis, emphasizing the importance of mental and emotional support in tandem with medical treatment.
Q: What sort of support systems are available for individuals diagnosed with sarcoidosis?
Prof.Souhaibou Ndongo: There are various forms of support available. Medical professionals can provide treatment plans that may include corticosteroids and immunosuppressive agents to reduce inflammation and manage symptoms. Additionally, patient associations, like the Francophone Sarcoidosis Association, play a vital role in offering support networks, resources, and educational materials to help individuals cope with their diagnosis.
Q: can you shed light on the challenges faced by women in precarious administrative situations regarding access to healthcare?
Doctor Jean-François Corty: Access to healthcare remains a significant challenge for women in vulnerable administrative situations. The restriction of access to state healthcare (AME) has profound implications for their health, making it harder for them to recieve necessary treatments for chronic diseases like sarcoidosis. Advocating for inclusive healthcare policies is essential to ensure that everyone, regardless of their status, can receive appropriate medical care.
Editor: Thank you, professors and Taoussy, for sharing your insights and for your commitment to raising awareness about sarcoidosis and the challenges faced by patients. Your contributions are invaluable, and we appreciate your efforts in educating the public about this complex disease.