DECRYPTION – Taking care of children very early makes it possible to limit the handicap. But the diagnosis too often takes a long time to be made, and the parents often find themselves helpless.
“All my life I’ve known that something was wrong with my left side: it was weaker, my hand kept closed, I was tripping… But my only ‘treatment’ was an elevated shoe, because my left leg was shorter. I never heard of anything else.” Emmy suffers from cerebral palsy, a disability born from a brain injury acquired before, during or just after birth.
But while the difficulties of the young woman were obvious, she did not put a name to it until… 32 years old! Did his parents know? Perhaps they wanted to protect her from a heavy label to wear, supposes the young woman. But his doctors never told him about it. And she never benefited from the care that could have limited her disability.
A long way
Another time, another place: almost eight years ago, Christèle gave birth to Philippine. “Three weeks before giving birth, I felt that she was no longer moving like before.she recalls. We checked his heart, did an ultrasound…