2023-10-24 11:42:57
The Malasmadres Club community closes the Third Edition of the solidarity action ‘They Count’ with the recognition of four women with great stories of struggle. The initiative, launched in 2021 by the Malasmadres Club and Cinfa, gives a voice to women who face different life situations: the illness or disability of a son or daughter and the challenge of facing their own illness or functional diversity. In this third edition, 212 women from all over Spain have shared their life stories, thus adding to the nearly 600 stories presented in previous editions.
The four women selected are Marian Vaya García (Seville) and Zuriñe Lasagabaster Silva (Valladolid), recognized in the category ‘Caring mothers of boys and girls with illnesses or special needs’, and Raquel Juárez Villamarín (Madrid) and Cristina Mata Torrado (Puertollano) in the category of ‘Women who live with a disease or functional diversity’.
In first person
Marian Vaya García She is the mother of two boys and a girl and all three have been diagnosed with Friedreich’s Ataxia, a rare degenerative disease with no cure. Four years later, she fights every day to give visibility and get more research through her account @viviendo_con_ataxia. «Being part of ‘They Count’ is one more step to give visibility to my children’s illness. It is something that was clear to me from the first edition,” declares Marian. Thanks to this project and the help of Cinfa, Marian’s children will be able to access Therasuit physiotherapy sessions and other therapies to alleviate the symptoms of this difficult disease.
For its part, Zuriñe Lasagabaster Silva She is the mother of Ibai, a child diagnosed with 3-hydroxy isobutyryl-coa hydrolase deficiency, an ultra-rare disease suffered by about 35 people around the world and 4 or 5 in Spain alone. For Zuriñe, mother of two other children, “this motherhood is very different, a motherhood that I did not ask for, full of medications, therapies, drawing strength from where there is none.” In her case, she will allocate Cinfa’s help to the therapies that Ibai needs to have a better quality of life in her daily life, a reality that she makes visible through her account @madredetresyunnegocio.
In the category of ‘Women who live with a disease or functional diversity’, there is Raquel Juárez Villamarin, diagnosed with relapsing-remitting multiple sclerosis in 2013 and, a year later, with metastatic breast cancer, a disease that ended up affecting the cerebellum. Currently, she suffers from bone metastases and continues to receive daily hormonal treatment and adjuvant treatment every 21 days. For her, her participation in ‘They Count’ is a way to help many women, sharing her experience and making visible on her account @ raquel.hugo.aitor a different motherhood, marked by the fight against disease. In her case, her recognition will go towards metastatic breast cancer research.
The second recognized in this category is Cristina Mata Torrado, who was detected with an osteogenic sarcoma in the head of the tibia and fibula and, at the age of five, had his leg amputated above the knee, and had to receive chemotherapy treatment for three years to save his life. Since then, she has lived with functional diversity. The help from Cinfa that she will receive thanks to the ‘They Count’ project will be used to improve her prosthesis and to rehabilitate her body, which, as she explains, “is increasingly suffering.” She shares her experience daily through the @lasonrisadecristinam account.
A project to give a voice to thousands of women
«’They Count’ has moved us again and will continue to do so every year. Because behind the 212 stories, there are great women, fighting mothers, there are committed families, who are an example, inspiration and also hope for all those who fight every day to move forward.
«This third edition gives us many stories that deserve to be recognized. Marian, Zuriñe, Raquel and Cristina will be recognized at the gala on the 26th because their stories matter and they are already part of this journey, which we started three years ago and which I hope can help many more. Our commitment, that of Malasmadres and Cinfa, is to grow the ‘They Count’ community so that they do not feel alone, to listen to them and help them with everything they need because emotional support is key for all of them,” says Laura Baena, founder of the Malasmadres Club.
A very special gala
“Thank you to the more than 200 brave women who have opened your hearts and shared your stories with us, because they make us aware of the harsh reality that you live, a reality that deserves to be recognized and made visible,” says Enrique Ordieres, president of Cinfa Group. “Now, together with Malasmadres, we will continue to move forward to build that community that is for you a place of meeting and listening, where you feel accompanied and supported.”
He Next October 26, the Third Edition of Ellas Conenta will close with a gala in Madrid to honor the four women recognized this year, and, with this, continue contributing to making visible the numerous stories of struggle and overcoming the disease that exist.
Other stories that deserve recognition
Along with the four women selected among the five most voted stories, there are other testimonies that have also received social support. In the category ‘Caring mothers of boys and girls with illnesses or special needs’, there are also the stories of Cristina Gutierrezmother from Cádiz of a 15-month-old girl with an ultra-rare disease without treatment or cure, who gives visibility to her daily struggle through @elcaminodevalentina29; Laura Lopezwho was informed on February 20 that his son suffered from a genetic mutation called SPATA5, which led, among other things, to epilepsy, lack of head control, hearing and visual problems or motor and intellectual delay, and Sure, Bilbaomother of a son with moderate autism, a situation that led her to preside over the non-profit association Autismo Euskadi.
In the category of ‘Women who live with a disease or functional diversity’, stories such as that of Cristina Lopezdiagnosed with breast cancer, once already had metastases in the liver; Julia Paredesdiagnosed in 2021 with multiple myeloma, a little-known hematological cancer that affects around 12,000 people in our country, and Consuelo Ibáñez, who suffers from a neuromuscular disease that causes spasticity, hypotonia and poor coordination of movements.
Learn about the 212 life stories presented to the third edition of this solidarity initiativein addition to having access to this video.
As a socially responsible company, and within the framework of the SDGs, Cinfa, the laboratory most present in the homes of our country, carries out various initiatives in line with its mission of working for people’s health. In this way, the solidarity action ‘They Count’ joins ‘The voice of the patient’, ‘The patient’s gaze’ y ‘CinfaTeaming’, that support and focus on the daily reality of patients and other vulnerable groups.
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