a look at the more human side of the disease

by time news

After the editions of ​ 2020 Yes 2022Cinfa presents the third volume of the book ‘The patient’s gaze’. In this case,⁣ the work collects twenty new photographs, selected from those presented in the competition of​ the same name, ⁤with the aim of conveying the daily reality of‍ people with life stories marked by illness and disability.⁤ Each snapshot, in‌ its own way, shows us the most human and harsh side of the disease, but also a day full of ⁤emotions, tenderness and beauty.

Together with ⁤the photographs we will be able to read twenty stories inspired by them written by ​figures from the world of art, ⁤sport, culture or gastronomy of our country. The astronaut Sara García, the writer ⁤Ángeles Caso, the athlete Alex Roca,​ the actress Lola ⁤Herrera, the ‍chef Ferran ​Adrià​ and the ⁤actor Miguel Ángel Muñoz are some of the authors who⁢ tell ‌us about⁢ it, from an intimate and personal point of view , the stories hidden behind every snapshot.

“Page after‍ page, we ‍have revealed the stories of‍ patients and the people who care ⁢for them to make us ​look at everything in a different, more⁣ human, more​ empathetic way”,‌ explains⁢ Enrique⁤ Ordieres, president of Cinfa. From Cinfa we invite⁢ you to ⁣read ‘The ‍patient’s gaze’ from the pause and from the‍ emotion. And then, open your eyes ‌around you​ with ‌a gaze that goes⁤ beyond the obvious and digs into the depths of every patient, every ⁣illness, every story, every person.

Recognition of patient associations

With this work, Cinfa also aims to recognize and support Spanish patient ⁢organizations, ⁣which carry out essential support work. For ⁤this reason, each image in the book is linked to a‌ different association,‌ chosen ‍by the author ⁣of the photograph, and receives a donation from Cinfa. “We at Cinfa want to express, ⁤once again, ‌our admiration, recognition and support to all the Spanish patient associations, who ​know‌ they can count on us”, adds Enrique Ordieres.

The third volume of the book⁣ ‘The patient’s point of​ view’ by Cinfa (downloadable for free at lamiradadelpaciente.cinfa.com) is composed of the following‌ images and texts:

1. ​’A life for Mateo’, by Inma Ríos Escamilla,⁢ with text by chef Ferran Adriá. In favor of the Ana Carolina⁢ Díez Mahou Foundation.

2.‌ ‘Hands⁤ que‍ miran’, by ‍Antonio Aragón Renuncio, with text by the writer ​Ángeles Caso. In ⁤favor of the NGO Oasis.

3. ‘The Strength of ‌Children’, by José Ignacio​ Rodríguez Rubiales, with lyrics by Lola Herrera, actress. In favor ⁤of⁣ the Oncology Association of Extremadura (AOEX).

4. ‘The skin I live in’, by Diego Menjíbar Reyes, with text⁢ by journalist Lorenzo Milá. ​In favor of​ the Fontilles ‌Foundation.

5. ⁢’The Kiss’, by Jorge Prieto Muñoz, with lyrics by Ana Belén, actress and singer. In favor of the Grace and ‌Peace Foundation.

6.⁢ ‘The ⁣Best Medicine’, by María José González Lama, with text by Miguel ​Ángel Muñoz, actor and director. In favor of the Association of ‍Parents and People Affected by Autism Spectrum Syndrome⁤ and other TGDs ‌of Cantabria (APTACAN).

7. ⁢’Aarón’, ⁢by Xavi Almirall Mir, with lyrics​ by Almudena Cid, Olympic gymnast⁢ and actress. In favor ⁢of the Association of Relatives and People ​Affected by Growth Pathologies (AFAPAC).

8. ‘My‌ secret window’, by Pedro Herráiz Merino, with text by Sara García,⁤ astronaut and researcher. In favor of the ⁢Spanish Association against Cancer of Valencia.

9. ‘Love heals’, by Ana ‍Cruz Fernández Rodríguez, with text by Nacho‍ Duato, choreographer. In favor of the ⁤Leonese Association ⁣for‍ the Help of Cerebral Palsy (Aspace León).

10. ‘Drink water’, by Núria Graell Bullich, with lyrics by Pablo Berger, director. ⁣In aid of the‍ MSD Foundation, Multiple‍ Sulfatase Deficiency.

11. ‘To the top’, by Alberto Navarro Ramírez, with lyrics by Alex Roca, athlete suffering from ‍cerebral palsy. In favor​ of the⁢ Sport Senza Barriere Foundation.

12. ‘Toda una vida’, by ‍Martín Corradini, with‌ lyrics by Edurne, singer. In favor of the DEBRA Spain Butterfly Skin ⁣Association.

13. ‘La mama y​ el papa’, ⁣by Marc Minaya Ruiz, with text⁤ by Emilio Morenatti, photojournalist. In ​favor of the INVI Association against male breast cancer and other related diseases.

14.⁣ ‘The Look’, by Mónica Miranda Pérez, with⁢ lyrics by María Castro, actress. In‍ favor of the ‌Cerebral Palsy and Related Association of Burgos (APACE Burgos).

15. ‘Se miran’, ⁤by José Manuel Mateo Grau, with⁤ lyrics by⁣ “El Langui”, actor and rapper. In favor ​of ‍the Association of People with Physical Disabilities of Alicante (ADIFIA).

16. ‘Understand me’, by Rosy Carrillo,⁤ with text by Elena García Armada, engineer and creator of the ⁤first pediatric exoskeleton. In favor of the Provincial Association of the Mentally Disabled of Jaén (APROMPSI).

17. ‘Valentino, marathon dreams’, ⁢by Francesco Guarino ⁤Henderson,⁤ with text by ‌Susana Rodríguez, paralympic‍ athlete. In‍ favor of the Spanish‌ Association of CDG Syndrome ‌(AESCDG).

19. ‘Pain transformed into smiles’, by Lidia Fernández del Campo, with lyrics by Diego Cantero «Funambulista», singer and composer. For the benefit of⁣ the Tarlov Cyst Association.

20. ⁣’Alzheimer erases the memories that love fills’, by Ana Martínez Crespo, with text ⁣by Maribel López, director of ⁢ARCO. In favor of the Alzheimer Foundation Spain (FAE).

How ‌can literature and art raise awareness about rare diseases and support organizations like FEDER?

By ⁢the writer ​José Luis Martín. In favor of the ⁣Association‍ of​ Patients ⁤with Rare Diseases‌ (FEDER).

13. ‘The game of life’, ‌by Carlos González, with text by ‍the actress⁤ María Adánez. In ​favor of the‍ Association of ​Patients with Leukemia and Lymphoma ⁣(ASLEU).

14. ‘Hope’,​ by Javier ​Moya, with text by the singer Ana Belén. In favor​ of the Spanish Association of People Affected by Multiple Sclerosis ⁣(EME).

15. ‘The light⁢ of the ​lighthouse’, by Laura Vallejo, with text⁤ by the ⁤athlete María Vicente. In favor⁤ of the Association of Parents​ of Children with Cancer‍ (CORI).

16.‍ ‘The dance ⁢of life’, by Juan Carlos García, with ​text by the dancer Antonio Gades.⁣ In favor of ⁣the Spanish Federation of Parkinson’s Patients.

17. ‘My friend’, by Manuela ‍Higueras,‍ with text by the ⁢actor Diego Martín. In favor of the Association​ of⁣ Patients with Alzheimer’s Disease.

18. ‘Embrace’, by Eva Requejo, with text ‌by the writer Elvira Lindo.‍ In favor of the‍ Spanish Federation of Cystic Fibrosis Patients.

19. ‘The path to recovery’, by Patricia Herrero, with text by the journalist Ana Rosa ⁢Quintana. In ​favor of the Association of Fibromyalgia Patients.

20. ⁤’A new ⁢dawn’, by Samuel González,‌ with text ⁣by the‌ singer Pablo Alborán.⁢ In‌ favor of the Spanish Association of Rare⁤ Diseases (AER).

Cinfa encourages everyone⁢ to ‍not only enjoy these powerful images and stories⁢ but also to contribute in‌ whatever⁣ way they ⁤can to support these vital patient organizations. You⁢ can download the complete third volume of​ ‘The patient’s gaze’ for free at‌ lamiradadelpaciente.cinfa.com.

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