Sharing 0700 – For Our Wisdom will be broadcast on EBS1TV at 11:25 am on Saturday, October 12th.
Jihye, 21 months old, with rare disease
Jihye, who is only 21 months old, starts her day wearing glasses again today. Jihye has retinopathy and had eye surgery as soon as she was born. Currently, her left eye is in a condition where she can barely recognize shapes. Jihye has other areas that need treatment other than her eyes. This is because Jihye is unable to sit or stand on her own. Jihye, who is shorter in height and weight than her peers, was recently diagnosed with a rare disease due to a gene abnormality called CTNNB1. Mom and Dad feel bad because they feel like it’s all their fault that Ji-hye is sick, but Dad Young-seok wonders if Ji-hye’s eyes are bad because his eyes are more protruding than others. She feels sorry, and her mother, Sae-rom, is shedding tears of self-reproach, saying that she was careless and that Ji-hye was born as a premature baby and these problems occurred.
Youngseok, a father who drives a taxi for the disabled, picks up waste paper, and even works in a salt farm.
Saerom, a mother who takes care of Jihye despite her disability.
Mom and Dad’s days are busy every day for wisdom. Currently, my father, Youngseok, is working so hard that 24 hours are not enough. He basically works in shifts driving a taxi for the disabled for the transportation vulnerable. On days when he works at night, he sleeps less, goes to a nearby salt farm to work, and saves time. Every time I have time, I do my best by picking up waste paper and even driving for them. The reason why Young-seok works so hard is because he owes Ji-hye’s hospital bills 30 million won and was told that he needs to receive more rehabilitation treatment after being diagnosed with a rare disease. It is not easy for her mother, Saerom, to find a job because she has a speech impediment and stiffness in her hands. Her hand tremors are so severe that she cannot make fine movements and has difficulty communicating with people. However, we are doing our best to take care of Jihye despite her discomfort.
Please send your love to the three families so that they do not lose hope.
Jihye has a rare disease and needs to go to a large hospital. The hospital they attend is two hours away from their home, so going to the hospital every time is not easy for Jihye’s family. I use my dad’s car, but he pays all the expenses, so the cost of going to and from the hospital is well over a million won a month. However, Jihye was recently diagnosed with a brain lesion caused by a rare disease, and was also diagnosed to need more treatment. It is said that in order to improve the symptoms of leg stiffness, you need to wear braces and receive injection treatment. It is said that increasing the number of rehabilitation treatments will help wisdom move. Mom and Dad are willing to do anything for wisdom, but when they think about the increasing medical expenses in the future, their eyes are dark. We ask for your interest and love so that mom and dad can raise money for Jihye’s treatment.
EBS’ representative social contribution program that supports neighbors in need by collecting donations of 3,000 won per currency. . Episode 735 to be broadcast at 11:25 a.m. on Saturday, October 12, 2024 The episode tells the story of 21-month-old Wisdom, who has a rare disease, and her mother and dad, who work hard to protect her.
Photo EBS ‘Nanum0700’
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